Submitted by carol banks on Wed, 10/27/2010 - 22:33.
I just received my first alert. It was dated 10/26 and I read it 10/27. It said that in the next 24 hours would be an arthritus alert. And they were correct. Thanx.
I am finding since I joined this site for Migraines & Arthritis. I get the migraine warnings the day I end up with a migraine & vise verse.
I know there is nothing normal abotu me, I have 'RSD' Reflex Sympathetic Dystrophy AKA 'CRPS' Complex Regional Pain Syndrome. So many times my aches & pains are do to that as well as my Arthritis, which both diseases are weather related.
I have been sitting back, watching the warnings & so far all of the Arthritis warnings are the days I do end up with a Migraine. I'm in the Pacific North West & we have seldom had a week without some kind of storm the past few months. I'm starting to think this weather is going to kill yet!LOL
By the way for those of you with a migraine that centers around the eyes or temple, I was given prescription eye drop, Proparacaine for my RSD when it flared in my jaw 20 some years ago. This is in the Lidocaine family. I use one drop up to 3 times a day now for my Migraines that center around the temple or eyes & it sometimes knocks out the migraine & other times it dulls it to a mild roar.
I see my eye Dr. yearly & have had no problems from using this medication as he was worried when I first met him & he saw it listed with my current medications. It does blur my vision when I use it for maybe 20 to 30 minutes so I do not do anything where I need to see well & I also am careful so that nothing is blown into my eyes when using it so that I do not get something in my eye that could damage it without my knowing beings it does numb my eyes completely. Keep that in mind if any of you do try using this medication!!
Sam
I get silent migranes, about every 2 months and then they are about 40 minutes long (I get them for about 2 days and about 2 a day ) and my vision is greatly impaired. The doctor I saw just said it was a silent migrane and not to be concerned that was about 10 years ago, since that time they have increased in duration and frequency. No pain, just very weird.
Don't know if this is the same thing but I get " aura " migraines . I consider myself somewhat fortunate because I get blurred vision or an "aura" before the migraine begins .If I take a couple of Tylenol as soon as this happens , I can avoid the severe migraine pain and the blurred vision soon disappears .
Hi There,
I am not a doctor but I am an expert at taking care of myself. Sometimes the doctors that I've seen don't have time, patience or energy to really investigate the issues that come up with my health. I was told that I had migraines's then left to deal with it alone. What I've found is that certain types of pain experienced by the body just go beyond the medical profession or at least any that I have access to currently.
I did take care of some of the pain issues by having two wisdom teeth removed however I noticed that pain around my right eye continued. The pain pools in the socket of my right eye then sears in to the back of my head, like somone has stuck a letter opener into my eye, ya, ouch!
The only discernable reason for the reoccuring head pain, the only consistant factor, is the use of eye creams and moisturizers. It's become very clear, if I use any of them, any brand, I get this awful eye and head pain. This is the symptom that the doctors I've seen are calling a migraine. When I don't use them, the pain goes away and doesn't come back unitl I use them again. I've tested this out repeatedly. There is only one moisterizer that I can use and it is the Shopper's Drug Mart Life Brand Moisterizer for acne control. That is it, the only one. I have used Neutrogena, Roc, Burt's Bees, and many others. I now stay away from any product that does animal testing for ethical reasons, no amount of animal testing is going to do me any good.
It would be nice to have some medical community input on my personal finding. I am happy that I have found the reason for my own pain. It's an easy fix and saves me alot of money. I simply don't use cosmetics and I am pain free. Power to our natural beauty :-)
Join me at www.livelovelight.com
I can relate to you on this. I tried Oil of Olay face cream several years ago & I would get a very nasty migraine & my eyes would burn like they were on fire. I did NOT use it on my eye lids, or into the optical bone areas of my face. I called the company & they sent me coupons to buy more LOL.
Allergies can show themselves in many ways including gastro as well as migraines, watery eyes runny nose, brain fog etc..... Usually the allergy will show it's self any where from seconds (like odors), minutes, up to a day for gastro (IBS) irritations. At least this has been my experience, followed up by what my Allergist had told me when I went through allergy testing.
I do not use make up of any kind since I stopped modeling, beings it was required by the modeling company. I had heard from a make up company that most mascaras & make that shines, used cut glass to get that shine affect. This is RUMOR!! I know no facts on this. So after getting an infection from what we think was contaminated make up cause as a teenager we shared make up with friends. I figure if I'm going to look like death it should be a natural death look LOL.
Sam
Submitted by Ruatan Red on Thu, 01/21/2010 - 18:36.
Hi,
I've had a constant migraine headache for just over a year now. It moves between a dull ache to very sharp disabling pains that occur in various places around my head, mostly the temple and occipital lobe region or all of them at once. I'm constantly in pain and it gets worse anywhere from 24-36 hours before a MedClim alert shows up in my inbox.
I've adapted by eliminating most dietary triggers and not over exerting myself which makes the headache worse and working from home, as even the commute triggers more pain. But I'm curious to know what being cured would feel like, or at the very least what to expect in terms of a successful cure/med/treatment. My neck and the back of my head constantly stay painful, even when my headache is sort of dull. Do those of you that find success in meds also find that the neck pain is relieved as well? I'd give anything to not have these headaches but I'd also be happy to be able to move my head without setting off a wave of pain.
Anyone have suggestions on methods to try and ease neck pain in a chronic daily headache sufferer? Heat, cold has been tried, massage (made it worse), neck pillow etc. and nothing seems to help. I'm not giving up on a migraine cure but I'm also not optimistic at this point (have tried every med out there) so any relief I get may have to be homegrown and not presented to me by my neurologist.
Thanks
Submitted by cruisin2000ca on Thu, 01/20/2011 - 15:07.
It sounds like you have some sort of neck, shoulder injury...maybe an old one. I've had botox injections in these areas, as well as my temples. I have found that this really helps with the daily aches and pains, as well as cutting down on the severity and frequency of migraines. Hope this helps you
Submitted by mromagnoli on Tue, 01/26/2010 - 01:54.
I don't know if you've tried this: putting cold on your head and at the same time hot on your feet. It has worked for me. Also, stay away from bananas.
Submitted by angiemott on Wed, 06/16/2010 - 17:48.
For years if I just had a little taste of something that had this in it. Less then 5 minutes later full grown migraine. I was cured I knew what was causing them so I stayed away from aspartame. But just last year I got them back and was wondering what the trigger was. Then I read somewhere where you can have them with Thunderstorms. I went back to my diary of migraines and sure enough I had them along with the thunderstorms we had. Then this spring I found this site and subscribe to it but so far I have gotten my migraines different then what alerts I got. I have gotten the migraines before the alerts. I don't take prescription meds for them because the over the counter migraine stuff works if I take it before the migraine gets big. I also think the website where people log in to and let them know the area where they are at and what number of their pain is....Is a great idea.
Submitted by MaryAlice on Mon, 01/25/2010 - 21:57.
I too suffer from the symptoms you have in your neck and up the back of the head along with extreme sinus pressure/pain when the barometric pressure changes. Mine unfortunately has been going on for years. Like you I can feel the changes in the weather before the MediClim alert but the alerts are excellent in verifying why I am feeling the sinus pressure.
I have just gone to a new physician and on my initial visit, we briefly discussed ways to address some of my symptoms. The suggestion for the constant pain in the back of my neck and head was to look at a low dosage anti-depressant that seems to, according to my doctor, have some success for some people. The anti-depressant apparently relaxes the tensing muscles thus addressing that issue. She also suggested acupuncture in combination with yoga. I have tried acupuncture before but not on a continual basis, but did find temporary relief when I did have a session.
I would imagine acupuncture can also address my sinus issue, but if the neck/back of the head pain can be managed, that would be fantastic. It would be nice to have one day go by without a headache.
While I haven't started on any regime, I can't say if they are affective, but hopefully these suggestions will be another avenue for you to explore with your doctor.
Good Luck
I'm on a daily low dose anti-depressant and its a god send. I've been on it for 18 mths now. My Dr. is actually on the same dose for migraines as well. He and I can pinpoint the days when we both had any break through headaches due to weather changes. I've gone from 28 migraines in one month to 4-5 in teh past year. Anytime we have had breakthrough headaches they're managable with regular one dose treatments. Mine being Maxalt, much better than Imitrex was.
I just had an idea for your website. It would be nice if you had an option for people who are currently experiencing a migraine to click on a number that rates their pain level. This number along with the city location of the sufferer can be shown in real time on a Google map and/or averaged with other peoples numbers in the same area.
This is a great method of showing your users a live account of migraine severity by location. Please let me know what you think about this idea.
Spitfire (Mike)
Thanks so much for your suggestion. We love to get feedback and learn how to improve our service. We'll definitely add this to our list of interesting ideas. Keep them coming!
An excellent idea, and very simple and inexpensive. If manpower is needed to collect and display the responses, how about asking for volunteers from this group. [I'd be happy to volunteer.]
It's hard to get numerical data [I'm a scientist] and Spitfire's suggestion would give us some numerical data which would allow anyone to scan the maps and come up with ideas for their own testable hypotheses. Some clear patterns may perhaps also emerge directly from these aggregated observations without further study.
I think this is a fantastic idea. It could give everyone a grand perspective of how certain regions affect sufferers of any type. I'd be willing to volunteer if you were to go ahead with this!
I, too, think this is an excellent idea. Trends could be seen and maybe all within a specific area could try same to reduce pain. I would gladly volunteer to be part of this.
Submitted by Mochahusky on Sun, 11/29/2009 - 14:37.
I have been suffering for many years with migraines. Like many of you, it seems each person has their own story as to why they think they might be causing them. I too, have tried everything under the sun and then some. I get them every day, I can have a few hours relief and then have a migraine for 3 - 4 days constant pain. I do end up with a day here and there of pain free and when that happens I feel like I can take on the world and that there is hope that they will go away. It is a desease, yet doctors have yet to label it as such. Anyone who suffers understands.
My doctors have diagnosed me with PTSD Post Traumatic Stress Disorder. Has anyone else out there been given this diagnosis and what steps have you taken to help this disorder. I currently see a psychologist and now the insurance company is getting me to go to see a psychiatrist yet again! I am on disability at the moment, and I wish more then anything to be rid of these migraines and return to work.
As well, I have been seeing a naturopath, and did the blood analysis. So far, it has not changed a thing for me and this is the second time around with a naturopath. Everyone is different, but I do recommend people try it like the person below this comment has mentionned.
All comments welcome.
I have been treated sometimes successfully and mostly unsuccessfully for migraines for well over 30 years and have a diagnoses of PTSD. As well, I have Crohn's disease and Bipolar which I have learned over time seem to be a package, so when I am treating one condition I am always concerned with the side effects of one med on another system in my body. Regarding the PTSD I highly recommend that you get yourself to a well experienced Trauma Specialist or at least a phychiatrist who specializes in PTSD who can help you move through the tough processs of therapy and get you to a place where you can feel stronger and safer. I went to an excellent residential program and then conitnued with my psychiatrist and the best words of wisdom that I ever took to heart re PTSD, was that it will pop up throughout my life, but I have learned to deal with it more effectlively and effeciently. I should also mention that I am on, and this takes into consideration all of my 'afflictions' a well balanced concotion of meds that help keep me sane....most of the time. I am still waiting for a winfall remedy for my migraines, but as I read the posts here, as I am a new member, it seems that I am not alone with my stuggle in waiting....but there is still hope:)
Submitted by dolcevita60 on Sat, 04/24/2010 - 14:03.
Hi Mochahusky,
I too was diagnosed with PTSD in 1998 and had developed debilitating migraines. I was put on disability in 1998. I was seeing both a psychologist and a psychiatrist. In 2000, I was referred to a neurologist who diagnosed the migraines and also told me to stop using over the counter meds such as tylenol and any other analgesic for any type of head pain. I was in a rebound migraine and headache cycle. Having both everyday. It took her 2 months to get an idea of my cycle. Turns out mine are caused by barometric pressure, hormones and of course, aggravated by stress. I had a wicked burnout. A catch-all term that describes someone who simply cannot say no to everyone and eventually simply falls apart. That is what happened to me. My neurologist put me on amitriptyline (100 mg) as a preventative measure (every day) and every med that you can name in the book for curing migraine attacks as soon as they come on. We had to find the meds that worked for me. That's how it is with migraine meds. The first one you try won't necessarily be the one that works.
I should say that when she first saw me, I was migraine-free 2 days a month. in 2002, when I returned to work, I was migraine-free 24 days a month. In 2005, she also put me on Topamax (100 mg) at night-time also as a preventative measure. I now take injections...Imitrex, whenever I feel a migraine coming on. I get about 6 a month still. I was off work for almost 4 yrs but have fully recovered. I am now fully functioning and taking university courses online while working full-time. I am changing careers at 49 yrs of age and am married with a teenager. There is hope. I have learned to listen to my body.
I know that in my case, my migraines were caused by a lot of factors, emotional, environmental but i have learned not to fight my body. Some people do not understand but I don't worry anymore about what people think it. I take my meds and listen to the warnings that my body give me.
I hope that this is helpful to you.
Hello this is Paul writing. I will attempt to keep this short, but I have so much to say.
I am permanently disabled as a result of a work-related accident in which I fell off a bridge I was working on a broke my back in two places. I have undergone three major back reconstructions. I was also diagnosed with PTSD. I also contracted Central Nervous System Vasculitis (C.N.S.V.). It is an autoimune disease in which one experiences inflamation of your blood vessels from your spin right up to and including your brain. Spinal taps are performed on you in order to detect an elevation in the Cerebral Spinal Fluid (CSF) indicating the presence of an infection. It is at this time one usually has active Meningitis. This causes head-aches worse than Migranes (if that is possible).
So the pain i my back usually indicates the coming of inclement weather and increased head pain is usually an indicator of the barometric pressure changing. It occurs when bad weather is coming or when good weather is coming. It is the rapid change of pressure my body does not like.
I have tried many different medications over the years. Everyone reacts slightly differently to a certain medication. For example when I was taking Amitriptyline, I experienced vivid colorful nightmares. Prednisone and different types of Chemo bring with them horrible side effects yet they keep yo alive. Balancing out all the different medications is always a challenge. I have a Doctor and a Pharmacist peruse all the different medications I take daily (over 30 pills 14 prescription), to ensure there in no known detrimental interactions
among them.
For the chronic pain I use a Fentenyl pain patch that is placed on my upper back and changed every 2 days, 8-10 Tyenol #3 with codine. For anxiety I take 3-4 Lorazapam. The myriad of other drugs are to combat the nasty side effects of the more toxic drugs and some vitamins in an effort to boost my immune system.
I have had head-aches so bad that you want to bang your head against a brick wall to make the pain go away. They make me vomit some time and blurr my vision. It is when you experience cognitive defects that is worrying. But hey there is always hope. I hope and pray everyone is feeling as good as can be and that this site helps. Keep the faith.
Paul
I have to tell you I am a big migraine sufferer and for years have been trying everything under the sun. I recently went to a Naturopath and she eliminated many things from my diet that are potentially flammitory foods, and cut out completely TIM HORTON'S COFFEE. Supposedly there is a small amount of MSG in their coffee. Well I have to tell you that my head feels so clear, I am less bloated and don't feel like headachy any more and I have not had a major migraine in two months! I am amazed! The Naturopath also did a blood test (small amount from my finger) for food allergies and you would be surprised what your body cannot tolerate.
I had eliminated all dairy, cheese, yogourt, and potentially pro inflammatory foods - pork, shellfish, mushrooms, eggplant, tomatoes, peppers, strawberries, potato, citrus. Avoid peanuts and pstachios. Stay away from wheat, and when she did a blood text (prick of the finger) it identified specific foods to stay away from, fruits (bananas cause migraines) pineapple, vegetables, the meat was fine, nuts, etc. but this is determined through the blood.
Once the blood work is done and the above has been identified, you can reintroduce one food at a time on the first list.
Hope this helps.
My son has had bad migraines for 4 years. We have subscribed to Medi-clim for about a year, I wish I still had the alerts listed from Jan 1/09- June 1/09 (thats when the computer crashed). Most of my sons headaches since June have occured the day before the alerts and I have made a chart of them. Recently, an internet article listed 'cows milk' as a #1 trigger. I've always just heard cheese, caffiene, wine. It has been just over a month since I banned the cows milk and in this time there has been 13 alerts....and he has had 2 headaches that were over in 3 hours! This has been a very exciting discovery for us!
I just want to say thank you so much to the person who set up MediClim, boy does it work. Received one yesterday and sure enough woke up with my head throbbing, so quickly took naproxen and zomig to relieve the pain from the weather. We are expecting thunderstorms tonight, so I will see how it goes.
Sue
Hi,
I just signed up today. I have suffered from migraines for as long as I can remember and always thought they were connected to the weather. I have a horrible one today and they are predicting thunder storms. Great site.
Hi! I am a migraine sufferer in my late 40's, having started at the age of 12. It has only been the last couple of years that I began putting our Alberta Chinooks & my headaches together. Four years ago, my son (then in grade 6) had his first migraine while at school. No one I know had ever seen one like it - it made him very violent (no one could touch him without getting hit) & light sensitive. We live in a rural town & the ambulance was called but they could do nothing until our Air Ambulance arrive & the Doctor on board managed to medicate him - so they could do things like take his blood pressure! He spent 2 days in the Alberta Childrens Hospital in Calgary & recieved wonderful care. He was assigned a neurologist who immediately assured us it was just a migraine - he had a CT scan while unconcious, & an MRI within a month of being released.
While I like getting the alerts (he is starting high school & I am very aware that he could be using a headache as an excuse to get out of school), but often find he is at least 12 hours ahead of the alert! I have a younger sister who is about 24 hours ahead. Is there any way it could be changed to a 36 hour warning?!?!?!
A son who is 12 hours ahead and a younger sister who is 24 hours ahead, sounds like your family has a higher sensitivity than most, perhaps they can help others who are also ahead for the same reason(s)? here wife and Grandaughter are 24 hours ahead I seem to be about 12 as far as dull headaches are concerned.
thanks Tezwazzy
Submitted by Migraineure on Mon, 03/22/2010 - 16:56.
I always joke that I could e-mail MediClim to tell them to send out an alert to me that I'm having a migraine ;-). I'll start getting a migraine, take an Imitrex, head to Mediclim to see if there's an alert and there's not. But sure enough, about 6 or 8 hours later, an alert shows up in my e-mail. :-) Guess we're more sensitive than the weather alorithm they're using!
Submitted by whatapain on Sat, 08/01/2009 - 20:31.
I'd like to say thank you to John Bart and Mediclim. I just joined today.
As someone who very often ends up in the fetal position, waiting until the storm passes (no pun intended) and the Relpax to kick in, I am hoping that I can use this resource to help improve my quality of life. I have been tracking my migraines for a couple years now, and found the last year I've added what the weather has been like to my log... only because it seemed to me that there was some kind of significance to it, but I didn't know what. Now I see that there really IS a connection, and it's not all in my head (again, no pun intended)! :o)
Also - I've looked back on the last few days I've tracked, and they correspond to the previous MIGRAINE alert dates you have listed! Impressive!
Submitted by CourtsieB on Wed, 07/22/2009 - 03:51.
Just signed up... Read about this site in our newspaper! My mom and I both get migraines, and the weather has a lot to do with it. Our friends laugh that we can predict the weather more accurately than the news. I live just south of Cincinnati, OH, but sometimes I start with a migraine when a storm pattern is still in Chicago. I think that this is probably common. The storm may break up before it ever gets to here, but I still get the pain! I also have some joint issues that seem to act up with rain and humidity changes. This seems like a great resource to be alerted of when to make sure to bring meds with me to work or school!
Submitted by nancymangano (not verified) on Sun, 07/12/2009 - 18:19.
I just moved here to Oil City PA and I am finding that I usally feel the pain the day before I get an alert. After the birth of my last child I started to feel flu like pain that was 23 years ago. It took year's before I was told I had fibermyaliga along with many other things. My daughter has it too. Alot of family members also have lupus. I hate it when doctors tell me my daughter is to young to have it or that what I have found for myself is wrong. I get b12 shots every month and it helps me with the pain. Headaches are so bad that nothing seems to work. then there is the stomache thing, nothing I eat stay's in long and most times I just can't eat but I keep gaining weight. All doctors I have seen think that there is one way everyone feels. this is not true. they also think you get better in time, I am worst. from headaches, brain fog, blurred vision, stomache problems, pain like the flu but 100 times worst. there are times it will hit one spot (toe,foot,ect) and stay there for some time and HURT. i HAVE TRIED THE ONLY DRUG THAT THEY HAVE PUT OUT FOR US AND I WILL NEVER TAKE IT AGAIN. The brain fog was so bad I could not funtion. I have been on disableity since 1999 and now they want to take it from me saying I must be better. I was a PBX operator and I only had to use my hands but my body pain was so bad I could no long do that. I would love to be able to work but there are days and some time weeks I can't get out of bed or walk, so how can I work. some times my brain fog is so bad I thought I had a stroke. It was only reading from sites like this that I found out about the brain fog. NOT ANY DOCTOR. thank you for letting me vent...
Hello
I am a journalist and am writing an article about Mediclim and weather/health issues.
I am interested in getting some personal stories about how people are benefiting from this service. The article will be published in Forever Young, a national publication for the 50-plus demographic. If anyone in that age group would like to share their experiences, reactions, comments about this service or anything along those lines, I would live to hear from you! I appreciate any responses I get.
These comments may be emailed to me privately at my email address: ellen.a@sympatico.ca
I hope to hear from some of you! Thanks.
Ellen
I have had what i think to be weather related illness symptoms. I have been prescribed allergy rx's for so many years without relief. What do you think?
Can you set MediClim up for multiple locations? While I have this on my home location, I work in several different locations and find that an alert at home does not necessarily translate into a migraine at a client site.
Have you ever thought about creating a Blackberry and/or iPhone app for MediClim? While I get the emails, sometimes there is a lag between when the alert hits my inbox and the time that it hits my Blackberry. An app that will link up with MediClim and give me my alerts would be very useful.
An iPhone would be great. You could use the gps to notify you if you are going into an area where there is an alert posted. It would be great when travelling.
Submitted by kelsiejay on Wed, 10/14/2009 - 23:35.
DEFFINATLY into that blackberry app. That would be amazing....
I get intense migranes all the time
Hate it.
Have to see a nuerologist soon .
-SoMeThIn LiKe A mOdEl *
Anyone know if we can get text message alerts? Sometimes I check my email too late to see the alert. A txt message would definetly be noticed faster and I would totally agree to a nominal charge for that kind of service.
Submitted by dinkjones on Wed, 03/17/2010 - 04:07.
Hi, I just joined and am checking out the site entirely and was looking for text messaging alerts and would be greatfull if this was possible. I do check my e-mail daily, but I have my cell phone with me constantly and could really use the earliest alert to migraines as possible. I have had migraines for 10 years now and just heard about this site, and plan on taking full advantage of it.
Submitted by michellelouise on Tue, 04/14/2009 - 17:09.
Hi there,
Wondering if it might be possible to post the reason why an alert has been issued. I'm assuming (perhaps incorrectly?) that there are different reasons for alerts such as rapid changes in barametric pressure, or significant temperature variations. I would be interested in knowing to better understand what specifically about weather/changing weather is bringing on the migraine.
Apologies if this information is already here somewhere, I couldn't seem to see it.
Thank you for your time.
I too would like to know the reason why an alert has been issued. Many of the alerts are accurate for me, but some are not. I assume there may be more than one reason for an alert... and if so, I'd like to be able to see if one reason is predicts my asthma flare-ups more than another.
Comments
arthritis alert
backward reports from this site, anyone??
sténose spinale et foraminale bilatérale
Silent Migranes
silent migraines
Cosmetics
Cosmetics
Cosmetics and eye/head aches
constant migraine sufferers??
migraines
I don't know if you've tried
Triggers!
aspartame is a big trigger as well.
constant migraine sufferers
I'm on a daily low dose
Mediclim Website Suggeston
Thanks Spitfire.
Website suggestion
Website Suggestion
Website Suggestion
PTSD & Migraines
PTSD AND MIGRAINE
PTSD and migraines
Migranes and Body Pain
Relief for migraine suffers
Re: Tim Hortons coffee
Food allergies
Naturopath
food allergies
Mediclim's perdictions
Migraines
Predicting the alert
A 36 hour warning/
Alerts
Me, too
Pre Alert
Thank You from a Migraine Sufferer
Hi!
new to site and area
personal stories
almost 50 and suffering
Multiple Locations
Blackberry/iPhone App?
iPhone app would be great
Blackberry/iPhone App?
text
Text message
Text message alerts
Posting reasons why
Posting reasons why